this is my life now... pain, nausea, memory loss, cognitive impairment, fatigue, anger, headache, fear, anxiety, confusion... doctors, doctors and more doctors... and a tremendous sense of loss...
i sure could use the healing powers of the island...
Can someone - ANYONE! - tell me why i have gone to countless doctors including at least 5 neurologists, concussion "specialists", rehabilitation physiatrists and i have yet to walk in to a single office and they explain this to ME!!!!???? why do i have to explain this to THEM???!!!
if anyone out there knows who can provide the type of testing shown at 6:00, please let me know!!!!!
That might be the biggest nightmare of all...i can find NO ONE that is educated like this. they all wanna talk about Craig Hospital and how that will not work because my injury was not a severe brain injury...it was 'mild'. well mild, my ass... if you know of a doctor in the Denver area (or anywhere in the Milky Way) that knows this stuff and can treat me, then God Bless you forever! PLEASE!!! someone find this for me!!!
Neuropsychological Tests and Imaging
do you think a Mild Traumatic Brain Injury is a Mild injury?
The Personal and Societal Cost of mTBI
Recently, i thought of a very good analogy for what happens when here is too much commotion around me. think of my brain as one of those snow globes...if you move it just a little bit, the snow gets scrambled and then you cannot see what it inside. whenever i get in the car, have a phone conversation, take a shower, etc., it's like someone shook it and everything is scrambled and i cannot see out...it is very disabling and frustrating...
This is what it feels like to get into a car for me. if you put one of the snow globes on a roller coaster, it's no wonder i get funny looks when i wobble in to a doctors office...
TBI-ozone Instead of living my life, I watch as others participate in theirs’, and I stay strangely passive as things happen around me. It is the damnedest thing, to be right in the middle of what is happening, and yet to be so far away, mentally and emotionally.
Then there’s all this noise and the commotion…and bright lights…too bright.
Some people try to reach out to me, but I feel so separate and I don’t know how to respond.
A Day in the Life of TBI a little insight on what most of my days are like: Every day is worse...Within 24 hours I went off the deep end. I cannot handle people. I think I am going to sign myself into the psych unit. I can't take any more of this.
I can't deal with all the stress people bring. They don't get it...my mind is not capable of figuring it out. I told my own daughter to take a hike. I think I have truly lost my mind
PERFECTLY said about dealing with the arrogance of doctors: "Only you live in your body, docs only can go by the brief time and what they see /notice during appts.
This is your life. You know what is important to you (ie recovery), you know what kind of life you want to lead (ie you want to get better rather than merely managing your symptoms on a daily basis), you know what symptoms you have. You are the one who has to live with the consequences of this decision. This has to be your choice. Do not live according to expectations and standards of someone else, especially those who hardly know you regardless of their titles and resumes. "
For those of you that want to know, this is what hurt me: Blair Upper Cervical Adjustment done by a chiropractor
let me be 100% clear about my position based on my experience with any chiro that uses the Blair Technique...
i would like to make my point crystal clear...
my life changed in an instant by a chiro that performed this for me, and i have come to learn that i suffered multiple concussions to my brain stem and i am nearly completely debilitated...
this technique is extremely risky and should not be performed...anyone that is offered this as treatment for the wide range of problems chiros claim it will cure should run for the hills...
i learned a very tough lesson...do not allow anyone to touch your neck like this, and never, never, never allow a chiro to do this adjustment to you for any reason...
if you do, you are taking a huge risk on quackery and snake oil.
it is irresponsible and shameless that a chiro would do this in exchange for a few pesos...they are worse than a whore, because with a whore you at least know what you are gonna get...
i was scammed for some beer money... then i was told i was "playing the martyr" about this...you know who you are and you know what i think of you...but in case you foget, i think 'fuck you' is in order...
each sunrise carries with it hope...
Life can change in an instant...yet:
"This is a fact: others absolutely cannot comprehend the enormity of what has happened to our brain after TBI. That’s all. Simple. They have no frame of reference that allows them to even begin to understand what has happened, nor should they be expected to, given where they are coming from, and that is something we need to understand. Even when we explain it to them, they cannot understand. Maybe it’s because we’re always explaining. It’s as if we are speaking English and they are speaking Mongolian: our friends don’t understand us, and we don’t understand them." Jeff Sebel http://www.tbisurvivor.com/2014/10/23/friends/
"The sad truth is that most people do not really get brain injuries, as sad as it sounds"
mild Traumatic Brain Injury on Wikipedia:
"the added stimuli of being around other people is too much for me to process and I feel dizzy, and have difficulty thinking when I am in a room with more than 2-3 people. For the last 19 months I have been spending most of my time alone"
"we are trying to deal with this "new" life and the struggles each day brings. I have been to the psych unit. You get meds and you get sent home, everything still there when you return. I am battling inner turmoil and feel I am on the brink of true insanity. My mind races constantly and I feel scared, nervous and lonely."
"I have bad days, and when I feel a little better I feel incredibly frustrated from social isolation, not being able to mentally engage myself (can't read a book, for instance), just being at home where no one really gets me. Then, when I have bad days, I am in too much pain to feel the frustration. This is madness." TBI Survivor
"there is a brain revolution underway (as in industrial or digital), but that information is not yet common knowledge among doctors and other medical professionals."
"I just feel very alone in this with my family. I feel like I am on the edge of a cliff, and they push and push....to see if I am really going to fall off." TBI Survivor
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